This is Grady. The sweetest 8 year old you have ever met. Enters and leave a room smiling as big as they come. He was diagnosed with ALD (Adenoleukodystrophy) last August 2018. Thankfully his parents were able to spot some very minor changes in Grady's hearing. After multiple doctors appointments and even being turned away until the next day, they pressed for further testing. An MRI showed a small lesion in his brain that was destroying his healthy normal 8 year old brain. A terminal disease that leaves manly boys in a vegetative state within a year of diagnosis was just given to the Smiths. A Hail Mary of a very difficult decision and many procedures would quickly start. The largest being a Bone Marrow Transplant. Within a month they had a perfect match donor. Grady not only took to the transplant quickly, he had very little complications from it. He was released almost a month early and has been managing his meds, treatments, therapies and minor setbacks at home surrounded by his great family and team of tutors and therapists. Despite this very grave disease, he is inspiring so many families and children going through this exact thing. We hope to continue this greatness through Grady and now through our first annual Jimmy Fund Walk. Keep pressing forward and knowing that time times don't last, tough people do.
I am participating in the 2019 Boston Marathon® Jimmy Fund Walk presented by Hyundai, taking steps toward the ultimate finish line: a world without cancer!
When you make a gift to my walk, you’re directly supporting Dana-Farber Cancer Institute’s unique 50-50 balance between cutting-edge science and highly compassionate cancer care. Your support allows Dana-Farber leaders to enhance programs and initiatives that serve pediatric and adult patients and their families.
Join my team and walk with us! Kids are welcome too! We’ll make this a great day and every year moving forward in honor of our buddy Grady Smith!!!
Thank you for supporting my participation in the Boston Marathon Jimmy Fund Walk. Together, we can conquer cancer!