As many of you already know that at the age of 2 years old my daughter Kiaraliz was diagnosed with an inoperable brain tumor called Optic Pathway Glioma. Upon hearing this news we kept asking ourselves how, why and most importantly what do we do! It only took a few hours before the whirlwind of activities began from Kiara undergoing surgery to place a port into her chest to meeting doctors from Dana-Farber and The Children’s Hospital to help us understand the diagnosis and treatment for this terrible form of cancer. Thankfully, during this time of uncertainty the Jimmy Fund Clinic was our biggest supporter to help us understand the disease and find the best treatment for Kiara.
The last 15 months have been awesome for Kiara and our family since she has not had a chemo treatment during this time period. Her tumor has not grown and we are blessed that she feels healthy, happy and strong at this time. Although, she is not out of the woods yet by any means since her type of tumor has a tendency to start growing again for no apparent reason. So because of this our days, weeks and months are still filled with many doctor visits, MRI scans and trips to the Jimmy Fund Clinic on a regular basis. I consider ourselves extremely lucky to have Dana-Farber, The Children’s Hospital and the Jimmy Fund Clinic to help our family deal with this disease and this is why we walk for the Jimmy Fund to not only help Kiara but to also help other kids and families going through their own cancer battles.
Thank you for supporting my participation in the Boston Marathon Jimmy Fund Walk. Together, we can conquer cancer!