I am participating in the 2021 Boston Marathon® Jimmy Fund Walk: Your Way presented by Hyundai, We have created the 10x NET CHALLENGE, TO RAISE MUCH NEEDED FUNDS AND AWARENESS FOR NET, NEUROENDOCRINE CANCER.
WHY YOU ASK?I
Since 2005, I was diagnosed a number of times with bronchitis and pneumonia. And had been suffering for quite a bit longer with high blood pressure and a tremendous amount of flushing.
In 2006 they noted a spot on my right lung, sent me to a pulmonologist, and was told it was probably nothing to worry about. Maybe I inhaled a peanut.
In 2007 year-to-date, I got pneumonia again, and the spot was bigger. After a bronchoscopy it was determined that it was a tumor, and cancerous. They still were not quite sure what it was.
Between December of '07 and December of '08 I had three lung surgeries, twice having a wedge resection done on my right lung.
After the first surgery I felt relatively good, and thought I was well on my way to healing. I was back on my bike, and starting to train for the Pan Mass Challenge.
Despite the fact that it was diagnosed as neuroendocrine cancer, a rear cancer with no known cure.... I think at the time the thought was that they got it all and my chance of reoccurrence was slim.
By June of '07,
I became very ill, ended up in the ER at Brigham and Women's, and almost died.
I had developed BOOP....
Bronchiolitis obliterans with organizing pneumonia (BOOP) is a rare type of lung damage. BOOP has many possible causes. Often, the cause is unknown. Although pneumonia is in the name, BOOP is not an infection.
Also in the array of tests being done at the time they determined I had another tumor, which led to my second surgery of the year.
So I went from being very positive after my first surgery , to a completely different set of circumstances after my third surgery in '08. Incredible symptoms, treatments and all sorts of testing and scans, and a couple of more near death experiences to boot.
The three surgeries in a row completely kicked my ass, took me 100% out of my game, as I continued for years to have incredible symptoms, visit after visit, test after test with no answers..... And no sign of any solutions. I was unable to continue working on or building my business. Life got pretty bleak......
So as stated there is no cure for net. There is no remission. You do get to a point where you are considered NED!
That stands for NO EVIDENCE OF DISEASE and all that means is these little suckers can grow so small, and so slowly, That they are undetectable.....
That is usually the case for somebody with diagnosed typical net tumors. For those that were iagnosed with atypical, The journeys tend to be so much more horrific, with a very short lifespan.
I consider myself very very fortunate and lucky, through diet and exercise, to at least beholding this dragon at bay. I am staying healthy enough that I am trying to do what I can, when I can, for as long as I can, to bring awareness and support to the horrific disease.....
It is so tough to describe , in a few short paragraphs, to show how effed up this journey has been.....
But this is why I created the 10xNET challenge!
WHAT IS THE 10X NET CHALLENGE?
IT IS SIMPLE WE ARE BUILDING A TEAM FOR THE JIMMY FUND WALK!
SO HERE IS THE 10X NET CHALLENGE PART......
I NEED YOU TO DONATE $10 TO OUR WALK TEAM........
THEN THEN THEN.....
THEN I NEED YOU TO FIND NINE OTHER PEOPLE TO COMMIT TO BUILDING THEIR TEAM OF 10.........
AND GETTING THEIR TEAMS TO COMMIT TO BUILD THEIR TEAMS OF 10.
You get the picture, We very simply HAVE 10,000 PEOPLE, CREATING AWARENESS AND FUNDRAISING FOR NET....
AND CAN VERY EFFICIENTLY RAISE $100,000.......
How freaking awesome would that be!
Are you up for the challenge?
The 10x NeT Challenge......
All you have to do is play tag, just keep tag-ing people till you get your committed team of 10
Thank you so much for taking the time to read this!