He was diagnosed with ALD (Adenoleukodystrophy) on August 17, 2018. Thankfully, it was caught early when his parents spotted some very minor changes in Grady's hearing. An MRI showed a lesion in his brain that was destroying his healthy, normal 8 year old brain. ALD, a terminal disease that leaves many boys in a vegetative state within a year of diagnosis, was just given to the Smiths.
Very difficult decisions were made and many procedures would quickly follow, the largest being a bone marrow transplant at Boston Children's Hospital with the help of the Jimmy Fund Clinic at Dana-Farber. Within a month they had a 10/10 perfect match unrelated bone marrow donor. Grady not only took to the transplant quickly, he had very few complications. He was released almost a month early and has been managing his meds, treatments, therapies and minor setbacks at home surrounded by his great family, team of tutors and therapists. Despite this very grave disease, he is defying all the odds and coming out on top! He takes on each day with a strength well beyond his 8 years. He continues to inspire so many families and children going through this same experience.
The outpouring of love and support from family, friends, the local community and beyond has been amazing! “Thank you” is simply not strong enough.
There is still a long road ahead, but we keep pressing forward, knowing:
“Tough times don't last, tough people do.”
By participating in the 2019 Boston Marathon® Jimmy Fund Walk presented by Hyundai, our team is making every step count toward the ultimate finish line: a world without cancer and other rare diseases!
Your support goes directly to Dana-Farber Cancer Institute’s unique 50-50 balance between cutting-edge science and highly compassionate care. Funds raised through the Jimmy Fund Walk enable Dana-Farber leaders to enhance programs and initiatives that serve pediatric and adult patients and their families.
Thank you for supporting our team in the Boston Marathon Jimmy Fund Walk. Together, we can conquer cancer!