Our five year old son Jonah lost his fight with cancer on November 26, 2021. Jonah was just just shy of his second birthday when he was diagnosed with a very rare pediatric brain tumor called ETMR (Embryonal Tumor with Multilayer Rosettes). Jonah fought valiantly alongside his medical team at Dana Farber. Jonah's tumor donation to Dr. Mariella Filbin's research lab at Dana Farber has led to groundbreaking research on his tumor type. We are driven to give other children with this devastating tumor a better chance of survival.
Days before Jonah's passing, I promised him that I would run another Boston marathon in his honor. I plan to run on April 17th, 2023 to honor Jonah and to fund further research on ETMR. During his treatment Jonah lost the ability to walk and run. He often asked if he could "run like Sonic". On Patriot's Day we will "run like Sonic" from Hopkinton to Boston for Jonah. His legacy lives on in our hearts and at Dana Farber Cancer Institute. Please help us reach our fundraising goal. Thank you in advance for your support!