Allan and I will be participating in our NINTH annual walk for the Dana Farber Cancer Institute Jimmy Fund on October 3, 2021. This will be a different walk from the usual and similar to the one we did last year. Due to the pandemic, the thousands of walkers who usually participate by walking along Boston Marathon route will all be finding their own route to walk. We will be walking closer to home. We will wear our Jimmy Fund swag so that others know what we're up to!. As you know, Allan had a relapse in fall, 2018 and was treated in 2019 with new therapies and has been in remission since that time. We are very grateful for all that Allan’s doctors and nurses have done for him and continue to do for him. In December, 2019, only months before the pandemic began, Allan gave a talk at the Dana Farber about his illness experience.
Allan initially developed symptoms of leukemia NOW 10 YEARS AGO in fall 2011 and had his first stem cell transplant in April, 2012 and had a second stem cell transplant in January, 2014. He weathered both of these procedures very well but by December, 2014 he had a small tumor in his back. This was treated with radiation but things were looking pretty dark at that time. Allan was able to receive a then experimental medication in March, 2015 – AG120 – a remarkable new medication targeted at the specific mutation of his leukemia, IDH-1. AG120 is now FDA approved and marketed as TIBSOVO. Allan has been on this medicine for 4.5 years and remains cancer free. We are very hopeful that researchers will continue to identify genes that cause AML and other cancers and develop new treatments based on this genetic information. It would be hard to describe our gratitude to the Dana Farber and the remarkable doctors and nurses who have cared for Allan throughout this incredible journey. Throughout all of this, Allan has continued to work, teach, mentor, and we have had opportunity to live life fully –enjoying our family and friends and before the pandemic…..having a chance to travel both in the U.S. and internationally. To say we are grateful to the DFCI for making this possible would be a wild understatement. Please support my walk in honor of my remarkable husband who has somehow weathered all of this with fortitude, grace and good humor.