I am participating in the 2022 Boston Marathon® Jimmy Fund Walk for the 5th year. 90% of all funds raised go directly to my doctors assisting in research to find a cure for Schwachman Diamond Syndrome with the other 10% going to the Jimmy Fund.
Most of you know my story; Upon moving to Boston in 2017 I was diagnosed with SDS and began care at Dana Farber with the amazing team of doctors, nurses and staff there. They make the visits as enjoyable as possible. Currently there is no cure for SDS, but we have raised about $75,000 to date from the generosity of individuals like yourself to try to change that. Thank you very much for supporting me.